Developing a Support System
Understand Cognitive Decline and Dementia
Being informed helps you and your caregivers recognize changes early, understand what to expect as the disease progresses, and make better care decisions. Learn about symptoms, progression, and treatment options at https://order.nia.nih.gov/view-all-alzhemer-pubs
Talk to Your Doctor
Maintaining regular medical appointments is essential for monitoring your health and making informed decisions about treatment and support.
- Talk to your doctor about what to expect and available treatment options.
- Discuss upcoming care decisions with your healthcare provider.
Find Local Services and Support
Local organizations and support groups provide practical assistance and emotional support for both patients and caregivers.
- Connect with others who are facing similar challenges.
- Access resources like respite care, caregiver training, and social programs.
Make Legal, Financial, and Long-Term Care Plans
- Start planning early. Visit alzheimers.gov for guidance on what to do after a diagnosis, including steps to prepare for the future.
- Organize important legal documents. Create or update your documents. These documents ensure your wishes are followed and someone you trust can act on your behalf when needed, including your:
- Will
- Living Will
- Health Care Power of Attorney
- Financial Power of Attorney
- Get help managing your finances. Learn how to protect your money and handle financial challenges related to dementia at https://www.nia.nih.gov/health/legal-and-financial-planning/managing-money-problems-people-dementia
- Explore long-term care options. Understand the types of care that may be needed in the future, like in-home care, assisted living, or a nursing home, and how to plan for them financially. https://www.nia.nih.gov/health/long-term-care/what-long-term-care
- Find help paying for care and everyday needs. You may qualify for assistance with costs related to medications, housing, and transportation
If You are Working
Consult your employer’s human resources department or employee assistance program about family leave, disability benefits, and other employee benefits.
- You may be eligible for disability income through private disability insurance, Social Security benefits, or veterans’ benefits
- Social Security’s Compassionate Allowances program may help with speeding up a disability claim. Call 800-772-1213 for more information or visit www.va.gov/disability amd www.ssa.gov/compassionateallowances
If You Live Alone
Find someone who can visit regularly and be an emergency contact. Also contact an occupational therapist who can teach ways to stay independent for as long as possible.
Explore Ways to Make Tasks Easier
Simplify your daily routine to reduce stress and stay organized:
- Use memory aids such as notes for reminders, a pillbox to organize medications, and a calendar to record appointments.
- Ask family members or friends, or find local services to help with routine tasks, such as cooking, paying bills, transportation. or shopping.
- Try using technology to help with medication management and safety such as emergency response and door alarms.
Be Safe at Home
Learn more about home safety by going over your home room by room to identify potential problems and safety issues. Immediately correct any direct dangers, such as loose stair rails and poor lighting. Additional home safety tips are available at www.nia.nih.gov/health/safety/alzheimers-caregivinghome-safety-tips
Stay Safe on the Road
Talk with your doctor if you become confused, get lost, take a long time to run a simple errand and can’t explain why, or if others worry about your driving.Consider getting a formal driving evaluation to help decide next steps.
Take Healthy Lifestyle Choices
A healthy lifestyle can support brain function and overall well-being.
- Be active and eat a well-balanced diet
- Stay connected with family and friends
- Participate in meaningful activities, such as hobbies or volunteering, to keep your mind active and engaged
Being informed will help you know what to expect as the disease progresses and will help you be prepared.
Source
- National Institute of Aging. Next Steps After an Alzheimer’s Diagnosis https://order.nia.nih.gov/sites/default/files/2025-08/next-steps-alzheimers-disease-diagnosis.pdf
Accessed on September 22, 2025.
